Twins / Triplets / Multiple Births

Support Groups | Special Concerns | Research | Geneticists

National and International Support Organizations

• Links and References on Twins, compiled by JRobinson

• Australian Multiple Birth Association (AMBRA)
  P.O. Box 105, Coogee N.S.W. 2034, Australia
  Phone: l 03 726.5579

• Center for Study of Multiple Birth (CSMB)
  333 E Superior St., Suite 464
  Chicago, IL 60611
  Phone: 312.266.9093
  Web page: www.multiplebirth.com/
  E-mail: lgk395@nwu.edu (LKeith, M.D.)

• Fullhouse MOMs

• International Society for Twin Studies
  c/o The Louisville Twin Study
  Child Development Unit, Health Sciences Center
  2301 S 3rd St.
  Louisville, KY 40208
  E-mail: apmath01@ulkyvm.louisville.edu

• International Twins Association, Inc.
  c/o Lynn Long or Lori Stewart
  6898 Channel Road NE
  Minneapolis, MN 55432
  Phone: 612.571.3022 or 612. 571.8910

• Mothers of Supertwins (M.O.S.T.)
  P.O. Box 951
  Brentwood, NY 11717
  516 434.MOST

• Multiple Births Foundation
  Queen Charlotte's and Chelsea Hospital
  Goldhawk Road
  London, England W60XG
  081 748.4666 ext. 5201

• National Organization of Mothers of Twins Clubs, Inc. (NOMOTC)
  P.O. 23188
  Albuquerque, NM 87192-1188
  Phone: 505.275.0955

• Parenting Multiples: Twins, Triplets, Quads or more

• Multiple Births Canada / Naissances multiples Canada
  PO Box 432
  Wasaga Beach, ON L0L 2P0
  Phone: 705.429.0901, Toll-free 866.228.8824 in Canada
  E-mail: office@multiplebirthscanada.org
  Website: www.multiplebirthscanada.org

• Twins & Multiple Births Association (TAMBA): twins, triplets, quads, quins, sextuplets, more

• Triplet Connection, P.O. Box 99571, Stockton, CA 95209, 209.474.0885

• Types of Twins

Special Concerns

• The Twin to Twin Transfusion Syndrome Foundation (TTTS): disease of placenta affecting identical twin babies during pregnancy. Educational, financial, and emotional support for families, medical professionals, other caregivers
  411 Longbeach Parkway
  Bay Village, Ohio 44140
  Phone: 216.899.TTTS
  Fax: 216.899.1184
  E-mail: TTTSFound@aol.com

• Australian Twin to Twin Transfusion Syndrome Support Group

• Center for Loss in Multiple Birth, Inc. (CLIMB)
  P.O. Box 1064
  Palmer, AK 99654
  Phone: 907.745.2706

• Miscarriage, stillbirth, or infant death support groups / resources

• Sidelines
  Education, referral information, support and advocacy services for women experiencing complicated pregnancies.
  Candace Hurley, Executive Director, 714.497.2265
  Tracy Hoogenboom, 909.563.6199

• Twinless Twins Support Group International
  Supports twins (all multiple births) who have lost their twin through death, estrangement, or in utero loss. Also, twins whose co-twins are terminally ill.
  c/o Raymond W. Brandt
  11220 St. Joe Road
  Fort Wayne, IN 46835
  219.627.5414
  TWINSWORLD(tm) magazine

• Conjoined Twins International (CTI)
  PO Box 10895
  Prescott,AZ 86304 USA
  520.445.2770
  E-mail: jmsjr@northlink.com

• Conjoined Twins Information

Research / Epidemiology Centers and Registries

Twin studies, biology of twinning, diagnosis of zygosity, twin studies in diseases

• International Society for Twin Studies
• Laboratory of Statistical Genetics, Rockefeller University, NY, NY
• Genetic Epidemiology Laboratory of the Queensland Institute of Medical Research, Australia
• Australian Twin Registry, National Health & Medical Research Council (NHMRC)
• Program in Statistical Genetics, Department of Statistics, North Carolina State University

Other Resources:

• Take Two: Identical Twins in Focus, photographic exhibition, Wellcome Trust, identical twins, display ends Sept 24, 1999

• TWINS Magazine: National, bimonthly magazine for multiples - twins, triplets and more.
  P.O. Box 12045
  Overland Park, KS 66282
  Subscription: 800.821.5533

• Twin Pleasures Publishing Corp. positive, contemporary books on twins (and other multiples) and their families.
  P.O. Box 36097
  Indianapolis, IN 46236
  Phone: 800.TWIN.BKS 800.894.6257 Fax: 317.823.7642

Also See:

• National organizations with information on genetic conditions or birth defects - variety of resources

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

Revised September 30, 2004

   

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